Tuesday, May 26, 2009

The way it's supposed to be..

So, I'm thinking of getting this in a 26x26, and hanging over my fireplace.

This is the most beautiful x-ray, not because of how clear it is, but because he went a whole week without getting an x-ray, and managed to keep fluid out of his right side.

Dr. Su wasn't there today, and he told me after we did bloodwork and x-ray to see a "Dr. Jou", who for some reason was nowhere to be found. The clerk told us to go home and he'd call us. I wanted to discuss Jack's bloodwork because I needed to know if we needed to still pump him with Potassium, which in some cases could be dangerous. So we waited some MORE- and still no Dr. Jou. So I decided to take things into my own hands Alli-style, and I went up to our second home, the surgical floor, and found an RN that recognized me. She was kind enough to look up Jack's lab results in the computer, and tell me that Jack's K is at 3.2, and it should be 3.5. So I then texted Dr. Su, who was kind enough to give me he cell phone number, and told him Jack's results, he said to stop one of the doses of Lasix, and continue the Potassium. This of course, was the official order- over text message. I also sent him a picture text of the x-ray, and he said it looked good- but would like to see it on a larger screen....

but believe me, this x-ray looks great.

So that is where we are. I have gained a bit of perspective, and I'm happy every time Jack screams at the top of his lungs because I know he has full lung capabilities. I'm happy when Jack asks me for 12 marshmallows. (I give them to him.) I'm happy when I see his incision site looking like it were never even touched, and healing beautifully. I'm happy when I go to bed- and wake up to his happy voice calling me from his bedroom.

Life is "normal" again, and I've never been so grateful for an average day.


Suzi said...

We are happy and grateful and thrilled and ecstatic too! ONe, because Jack is doing so much better, and TWO, because Sara and Rich have a new baby Owen, born at 2:45 a.m. this morning. Jack and Owen will have to meet someday soon. Dr. Su and Dr Ju...names that will going down in the Trent family history book. What a beautiful day!

Kyle and Alli said...

Alli-style. Classic. I would probably call it "bossy", "over the top", "don't mess with the mama", or "Oh no, it's her again!" but in any case, I love that you were able to get the answers you needed! I also love the official orders via texting. I really want to see how that is billed to your insurance! Continue to enjoy your happy normal life. I can't wait to come over one day and see Jack as his non-sick self. :-)

Christina said...

Good for you! I am happy to see such a great x-ray. "Normal" life is so nice.

Hugs & Prayers,
Jacob's Momma

Kelly D. said...


Aimee Hardy said...

Hip Hip Hooray! We're crossing our fingers that you are done with hospital stays for good.

And I'm with you, I'd give him the 12 marshmallows too. :)

Brit H. said...

Yay, Yay & Yay! So happy that he is doing better and doing well all together! Yay for Jack!

And Yay for you for being such a good mom.


Did I say that already?

Grandma Ann said...

Way to go!! Taking charge is a good thing when you are looking for results.
Yes, thank goodness for a normal day, you all deserve one.
Grandma Ann (Alex Stewart-HLHS-Transplant-2008)

Mindi said...

I'm not sure why, but I am shedding some tears of joy and triumph for you and Jack. You are wonderful. I love when pushy is sweet and right and perfect.

Thanks for sharing your experience. It helps others prepare. And that is really all we can do.

Heart hugs to you!

Mindi and McKay