My Macrocosm: ..and the saga continues.

Friday, June 26, 2009

..and the saga continues.

This morning Jack's x-ray looked the same. That is perplexing because we have had fluid output from his tube, and they upped the diuretic's. So they're concern was that it wasn't fluid- and it was possibly his diaphragm. So we did an ultrasound, but due to his incision bandages they couldn't get to it. So we went to fluroscopy and they took a picture of him breathing to see if the diaphragm was expanding and retracting. It was very obvious when we saw it that the right side wasn't working.

Now what? Everyone asks. I think that is what is going on downstairs with the Doc's. When I asked Bonnie straight up what to do if it isn't working- she said surgery.

So I don't know if there are any steps to try before that, or if it is something inevitable to help fix the diaphragm. But right now we have no answers for anyone- including ourselves. Hopefully we'll talk to someone soon.

On a lighter note- Jack seems comfortable. He is playing with his tools, ate some egg beaters for breakfast, and his spirits are good.

4 comments:

Kell's Belles said...: Oh dear. We'll keep praying for both Jack (for comfort) and his doctors (that they can figure this out and fix it). And of course, for you and Josh. Good luck!; June 26, 2009 at 11:50 AM
The Simmons Family said...: BUMMER... seriously... a break is coming soon.. it has to!! I am so sorry and I will be Praying that surgery is NOT in the cards. If it is, let jsut pray they can get it over with soon and get Mr. Trent Jackson (Ha, I still get a kick out of that) home soon.; June 26, 2009 at 1:02 PM
Christina said...: You guys have had a crazy time this go round. We will keep praying and sending good thoughts your way.

Saturday is the IHH picnic there on the 3rd floor at 4pm if you guys are up to coming!

Hugs & Prayers,
Christina; June 26, 2009 at 1:31 PM
The Smith's said...: Hi Lisa- I've followed your blog for a few weeks, but have yet to comment. I saw today's post and had to leave a message! After our son, Luke's, Glenn & DKS, he was having problems keeping his sats where they should be without oxygen. The docs did a diaphragm ultrasound and saw that Luke's right diaphragm was paradoxical. It had been paralyzed (whether permanently or temporarily we don't know) in one of his open heart surgeries and was now working in opposition to his lungs. So instead of expanding when it was supposed to, it was contracting & vice versa.

In our case, the surgery was called a diaphragm plication, which basically means they stitch down the paradoxical diaphragm so it can't work against the lung. It was definitely not in the same league as open heart surgery, but I know how you feel when contemplating another possible surgery. Yuck! Luke was extubated even before he left the O.R. and we only stayed in the PICU for 24 hours after that surgery.

I'm sure the docs have already given you much better information, but thought I'd share in case you were still wondering what the procedure was!

Take care and God bless!

Jesse, Mom to Luke (2), DILV
http://smithfamilyjourney.blogspot.com; June 26, 2009 at 2:34 PM

Current Jack Quote:

12/12/12

"Mom, this is how you get a baby: you cut a hole in your stomach the shape of an egg. Then you swallow an egg. It lands in the hole.. then grows into a baby."

02/02/12

‎"Jack, who drew this picture for you?"
"Victoria."
"She drew a picture that says 'I love you' and gave it to you?"
"Yeah. It was kind of awkward."

12/23/11

"Mom, if I'm bad and Santa comes and brings me a giant rock, I'll be so excited to climb on it! I hope that happens some day."

10/27/11

(at the Primary Program rehearsal, Jack got up to say his part that he memorized, but then, gave an unexpected shout-out..)

"Prophets prophesied about the life of Jesus Christ. I LOVE YOU JESUS CHRIST!"

10/13/11

"Mom, what's a "herd"?"

"It is a group of the same species."

"Oh. Like Lib and Soph." (My friends twin daughters.)

10/02/11

(While watching Toy Story 3)

Me: "Look, Molly is holding the monkey."

Jack: (under his breath) "I hate that monkey."

10/01/11

"Mom, I put my blue jay in the closet to keep him safe from creditors."

Good move, Jack. They're bad people.

09/28/11

"Can a candle glow in daylight?"

If a tree falls in a forest...

09/28/11

"Mom, is it time for school yet?"

"Jack, it's 11:00 now, school starts at 12:15."

(short pause)

"There's not enough hands on the clock."

So true, Jack. So true.

09/12/11

While embracing both Josh and I, "We're like a REAL family!!"

09/11/11

"Mom, did you know Jesus is nocturnal?"

08/23/11

"Guess what mom, I almost cleaned my room."

Guess what Jack, I almost bought you a toy."

07/21/11

"Mommy, my tummy is grumbling so loudly I think it's gonna SCAPLODE!!"

05/03/11

"Jack, why didn't you have show and tell today at school?"

"Well, we had to work- ..... it's a long story."

I hear ya, buddy.

03/28/11

"Someday, you'll make a great mom."

Thanks, Buddy.

02/14/11

"Brr MOM IT'S COLD!!"

"I'll turn on the heat."

"I wish I was in an egg shell and you could sit on me to keep me warm."

02/13/11

"Jack, do you know the story of Noah's Ark?"
"No.."
(tell story)
"...so, the rains came down, and the floods came up."
"Who made the flood?"
"God."
(moment of deduction..)
"Soooo, GOD made our BASEMENT FLOOD?!"

01/23/11

(in Jack's prayer..)

"Please bless that dada will come back.."

Amen, Jack. Amen.

12/29/2010

"I wish we could take a star out of the sky to put on top of our tree.."

12/16/10

(I hear a little toot...)

"Jack what was that.."

"It was my Bum talking to me."

"What did it say.."

"It said 'Hurry up Jack! You're gonna be late for school!"

12/15/10

(After seeing a puppy that was named 'Jack')

"Mommy, that was me when I a was a dog."

10/17/10

"I need to eat breakfast or my tummy will pop like a balloon."

09/08/10

Me: "Jack, it's going to start getting cold outside."

Jack: "Is it going to Fall?"

Me: "...Yes, it is going to be Fall."

Jack: "I can't wait for it to Fall. Then I can Halloween."

(Jack is turning nouns into verbs.)

09/10/10

"What is this for?"

"It's to help mommy try and have a baby."

"I know how you can get a baby, just ask Kelly!"

(My sister-in-law, who has had 4 babies..)

08/10/10

(while jumping on my bed)

Me: "Jack, please stop."

Jack: "But mommy, just let me play. I'm really good at playing here."

06/08/10

Jack: "Where are we going?"

Us: "Home."

Jack: "Why?"

Us: "To check on the basement."

Jack: "But the basement is dead!"

06/05/10

"Mommy! I just did an arabesque!"

05/30/10

(arriving in Snow Canyon, St. George UT)

Jack: "Mommy! We're in Radiator Springs!!"

05/20/10

(after a bout of silence riding home in the car..)

Jack: "Mommy? .... Do you like sugarplums?"

05/18/10

(putting Jack to bed)

Jack:"Mommy I want some juice.."

Me: "Jack, every time you drink juice before bed you pee your pants- in fact, you pee your pants even when you DON'T drink juice before bed."

Jack: "That's my point."

05/15/10

"Mommy, your plants are doomed."

05/08/10

Jack: "Mommy why are the hairs on top of your head white?"

Me: (utter sadness...)

05/03/10

Me: "Jack it's almost time for bed."

Jack: "Don't be ridiculous."

04/01/10

ME: "Jack, will you please close the refrigerator door.... Jack... please, please shut the fridge door.."

JACK: "Save your batteries, mom."

ME: (Speechless. Jaw dropped to the floor.)

03/25/10

"Mommy, I lost my noise."

(Jack, at 6am, woken with a hoarse cough.)

03/17/10

(After waking up from a nap on the airplane:)

"Mommy, my schwet is wet."

03/15/10

Jack: "I like your bum mommy, it's so smacky."

02/28/10

Jack: "Mommy? ...said Eva. Can I have some more Juice?"

Me: "Sure, Eva."

Jack: "....said Mommy."