Congenital Heart Disease is considered to be the most common birth defect, and is a leading cause of birth-defect related deaths worldwide.
Despite the fact that CHD affects approximately 1.8 millions families in the U.S., a relatively small amount of funding is currently available for parent/patient educational services, research, and support.
By sharing our experiences and providing information, we hope to raise public awareness about conditions that affect approximately 40,000 babies each year in the United States alone.
It is our sincere hope that efforts to educate the public will result in improved early diagnosis, additional funding for support and educational services, scientific research, and access to quality of care for our children and adults.
This week has been another reminder to us that not only are we not alone, but there are SO many children born with broken hearts. I am asked all the time if we "know anyone else with the same condition as Jack" and I will answer with a gasp, YES! There are so many... and though it is a sad truth, it is also a comfort that people can understand how important this is. There is a lot of research out there being done, and needing to be done.
CHD awareness week is almost over, but it is not too late to help the cause.